I Submitted to the Senate. Here’s What I Said.
I submitted to the Senate inquiry on the NDIS Future Generations Bill. Here’s why.
A few weeks ago I put together an 18-page submission to the Senate Community Affairs Legislation Committee. The inquiry is into the NDIS Amendment (Securing the NDIS for Future Generations) Bill 2026. I submitted on 26 May, just before the 29 May deadline. I also told the Committee I was willing to appear at the hearings in June.
This is not something I do every day. I’m a final-year law and business student at QUT, I’m autistic with co-occurring conditions, and I’ve been on the NDIS since the Brisbane rollout in 2018. I’ve had multiple plans. I’ve used all three funding-management modes — self-managed, plan-managed, and Agency-managed. I’ve been through the Administrative Review Tribunal. I know what this scheme looks like from the inside.
That experience is exactly why I felt I had to say something.
What is a Senate submission, and why does it matter?
If you’ve never heard of a Senate committee inquiry, here’s the short version. When the Australian Parliament is considering a new law, a Senate committee can invite the public to comment on it. Anyone can submit — individuals, organisations, researchers, peak bodies. The submissions become part of the official public record. The Committee reads them, sometimes calls people to appear at public hearings, and then writes a report that feeds into the parliamentary debate.
It’s one of the few places in the system where a participant’s personal experience carries as much weight as an expert’s opinion. You don’t need a law degree. You don’t need to be affiliated with any organisation. You just need to explain what this bill would mean for your life.
Submissions for this inquiry closed on 29 May 2026. Hearings are scheduled in Melbourne on 9 June and in Canberra on 10 and 11 June. For those of us in Brisbane, it’s videoconference only — which, honestly, is its own kind of commentary on access.
What I argued — and why it’s personal
Functional Capacity Assessments
The bill introduces Functional Capacity Assessments (FCAs) as a gateway to NDIS access. I’ve already paid for one. It cost me over $3,000 out of pocket. I’m on Centrelink. I took out a loan to cover it.
If the Commonwealth wants assessments to be the front door to the scheme, the Commonwealth should pay for them. Shifting that cost onto applicants — many of whom are already financially stretched — is not a reform. It’s a barrier.
We’ve been here before. In 2021, the Independent Assessments proposal was defeated after enormous community backlash. FCAs risk repeating the same mistake with a different name. My submission drew that parallel directly.
Plan management
The Explanatory Memorandum describes plan management in a way that does not match reality. I know this because I’ve lived all three versions of it. Self-managed gave me flexibility but came with admin burden. Plan-managed gave me a buffer. Agency-managed was restrictive in ways the EM doesn’t acknowledge.
No single mode is right for every participant. The bill’s framing misses that completely.
Support coordination
The proposed move to a commissioned and capped model for support coordination worries me. Support coordinators help participants navigate a genuinely complex system. Removing their ability to advocate freely, and capping what can be funded, takes away one of the scheme’s most practical tools for genuine choice and control.
Social and community participation
The proposed cuts to social and community participation funding don’t just affect activities. They affect connection. Isolation is a real health risk for many participants, especially autistic adults. Reducing this funding isn’t a savings measure — it’s a cost shift onto other parts of the health and welfare system.
Unscheduled plan reviews and unspent funds
Life doesn’t follow a schedule. When a participant’s circumstances change — a hospital admission, a relationship breakdown, a support worker leaving — they need to be able to request a plan review outside the normal cycle. Making that harder harms the people the scheme is supposed to serve.
On unspent funds: if a participant can’t spend their plan because providers aren’t available, or waitlists are too long, or the system didn’t deliver — punishing them by refusing to roll over the funds is not fair. The system failing should not become the participant’s problem.
“Build the ship before you remove the lifeboats”
That phrase ended up being the central argument in my submission. A lot of what this bill does is remove supports that participants currently rely on — before the alternatives are built, tested, or proven.
If the government wants to transition the scheme to a new model, that is a conversation worth having. But you cannot take away existing supports and simultaneously promise that something better is coming. You build the ship first. Then you remove the lifeboats.
The sequencing here is backwards, and participants will bear the cost of that.
One other thing I said
You may have seen the phrase “if you’ve met one person with autism, you’ve met one person with autism.” I used that framing deliberately. The bill’s drafting and the EM’s assumptions treat NDIS participants as a relatively uniform group. We are not. What works for one person can be actively harmful for another. Policy that doesn’t account for that diversity will fail people.
I also want to be upfront about something. I used AI tools to help organise and structure the submission. The arguments, the experiences, and the positions are mine — but I want to be transparent that AI assisted with the drafting process. I disclosed this in the submission itself. If you’re considering writing your own submission in future, AI can be a genuinely useful tool for turning your thoughts into a structured document, especially if you find writing exhausting or overwhelming.
You can do this too
Submissions for this bill have now closed, but inquiries like this happen regularly. If you’re an NDIS participant or a family member, your lived experience is evidence. It belongs in the public record.
You don’t have to write 18 pages. A few paragraphs explaining what a change would mean for your day-to-day life is enough. The Committee reads them. They cite them in reports. They matter.
Watch the NDIS Decoded blog and Policy Updates page — I’ll keep posting about how the hearings go and what the Committee recommends.
If you’ve been through the NDIS — multiple plans, providers, reviews, the lot — you already know things that no policy expert does. That knowledge is worth sharing.
Referencing Articles 19 and 28 of the UN Convention on the Rights of Persons with Disabilities in a Senate submission felt like a long way from the Brisbane rollout in 2018. But it also felt exactly right.
The scheme exists because people fought for it. Keeping it functional is going to take the same energy.
Want the full breakdown of what’s in the bill? Head to the Policy Updates page for a plain-language summary of the NDIS Amendment (Securing the NDIS for Future Generations) Bill 2026 — what it proposes, what it changes, and what participants need to know.
Source: Senate Community Affairs Legislation Committee — NDIS Future Generations Bill inquiry